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Hana Al -Shammas retreated from the role of her campaign in March after the diagnosis
The mother who helped obtain the use of approved medical cannabis in the United Kingdom died after a “short and brutal disease”. Hana Deskun played a fundamental role in changing the law in 2018 that allowed the medical hashish to be described for NHS patients.
Her son Alfi has a rare form of epilepsy, which means that he can have hundreds of seizures per week. Mrs. Deskun, 45, a petition to the government in March 2018 after finding his condition improved when he obtained a hemp -based drug in the Netherlands where he was legal.
In 2022, Mrs. Desicon, from Kenyrsh, Warwiksheire, said that Alphi, who was 10 years old, had been two -year -old seizures since the use of medical cannabis. After changing the law, Hana continued to support families throughout the country to reach the drug for medical use.
But in March, it was found that Hanna had cancer and that she would retract her role as president and secretary of the Medcan Foundation, which she helped prepare to help families reach medical hemp. The Foundation confirmed this week the death of Hanna.
A statement said: “We are sad to participate in the death of Hana Al -Shammas on Tuesday, May 6, and surrounded by those who love her, after a short and brutal illness. It is impossible to put this destroyed loss of the beloved Hana partner Druo and the children of Alfly and Annie.
“Hana was wonderful, designed, stubborn, and strongly emotion. Her fighting to find a cure for her rare and severe son, which led to a penetration other than his life and the ultimate change of law.
“She continued to change the lives of thousands of patients and families, and never stopped working to pressure for better access, better care, and better understanding of medical hemp. More than anything, Hana’s role was proud and important.
“Hana was our brave and beautiful partner, our daughter, sister and friend. It made us laugh, made us think, and made us feel powerful as soon as we were there.
“We are all better to know it. We just hope we have more time.”